Nevada Cancer Registry Overview
The Nevada Central Registry plays a pivotal role in measuring cancer incidence and supporting various initiatives, including comprehensive cancer control, health disparity reduction, advancements in prevention, diagnosis, treatment, and survivorship. We also actively contribute to cancer-related research efforts.
NCCR collects cancer case data from multiple sources, including hospitals, outpatient facilities, healthcare providers, and medical laboratories involved in cancer diagnosis and treatment. These cases are meticulously abstracted from medical records, ensuring compliance with state reporting requirements. The collected data is consolidated and undergoes thorough validation and editing processes to maintain accuracy and completeness. The timely and comprehensive cancer data collected by NCCR are indispensable for evaluating the effectiveness of cancer prevention and control measures.
North American Association of Central Cancer Registries (NAACCR)
Cancer Registries: Measuring Progress. Targeting Action. (by CDC)
Nevada Central Cancer Registry
Nevada Cancer Registry Overview
Cancer Reporting Law
The Nevada Central Cancer Registry is regulated by both Nevada Revised Statutes (NRS) 457.230-457.280 and those regulations adopted by the State Board of Health. This statute mandates the reporting of cancer in the State of Nevada. The Nevada Administrative Codes (NAC) 457.045-457.150 provides authority requiring hospitals, pathology laboratories, free-standing cancer clinics, long-term care facilities, ambulatory surgery centers and physicians to report cancer cases diagnosed and treated in Nevada to the Statewide Cancer Registry.
Note: Changes to LCB File No. R010-22 are not reflected in the online version of the Nevada Administrative Code (NAC). Please see attached document.
Public Law
Public Law 102-515, the Cancer Registries Amendment Act, was enacted in 1992. Through this Congress established the National Program of Cancer Registries (NPCR) through the Centers for Disease Control and Prevention. Through this Act, the NPCR was established to fund and support the operation of population-based, statewide cancer registries to collect cancer data.
HIPPA
Under the HIPAA Privacy Rule (1996), healthcare providers (“covered entities”) may legally disclose protected health information to public health authorities—such as cancer registries—without patient authorization when required by law [45 CFR 164.512(a)(1)].
Confidentiality of Data Exchange
According to NRS and NAC 457, “patient-identifying information may be exchanged among agencies authorized by the Department and upon receipt by the Department of satisfactory assurances by those agencies of preservation of the confidentiality of such information”.
Quality Control
Accuracy and consistency are essential components of any central registry. The data must be accurate, complete, and timely. Visual editing is conducted at NCCR on a percentage of all reported cases.
The NCCR conducts audits on quality control and completeness of data at randomly selected facilities. These audits are a useful tool to identify consistent reporting problems and supply meaningful training throughout the state on cancer data collection. The goal of the NCCR is to obtain complete reporting of all cancer cases in Nevada and to exceed the accuracy rate of 95 percent. The NCCR monitors completeness of reporting by reviewing frequency distribution reports for each facility.
Cancer Data
NCCR annually compiles comprehensive cancer data collected for all years of operation and submits a report to the Centers for Disease Control and Prevention (CDC)/National Program of Cancer Registries (NPCR) and the North American Association of Central Cancer Registries (NAACCR) and for analysis, certifications, and inclusion in national cancer statistics.
Contacts by Topic
- Program Management
- Kagan Griffin, MPH, RD – Interim Program Manager
- General Inquiries, Requests for Information, Facility Outreach
- Savannah Pimentel – Administrative Assistant
- Abstracting/Coding, Case Reportability, Death Clearance, QA, Edits
- Cathy Short, ODS-C – Quality Assurance Manager
- Abstracting/Coding, Case Reportability, Reporting Manuals, Updates to Contact Information, Training & Education, Data Exchanges
- Tiffany Goulding, ODS-C, RHIT – Oncology Data Specialist
- Hospital/Pathology/Data Submissions, Electronic Reporting, Web Plus Administration, Technical Assistance
- Rani Reed, Data Manager