Rare Disease
Rare Disease
The State of Nevada, Rare Disease Program has established two systems of reporting for sickle cell disease (SCD) and lupus and their variants to conduct comprehensive epidemiologic surveys and to evaluate the appropriateness of measures for treatment of these conditions.
The lupus and SCD reporting forms can be found under Resources, or by clicking in the SCD or Systemic Lupus Erythematosus (SLE) sections below.
Sickle cell disease (SCD) is a hereditary disorder where abnormal hemoglobin causes red blood cells (RBC) to become rigid, and sickle shaped. These cells break down quickly, leading to a chronic shortage, and block blood flow, causing pain, infections, acute chest syndrome, and strokes. Normal RBCs are round and flexible and typically carry hemoglobin, a protein vital for oxygen transport.
Lupus, or systemic lupus erythematosus (SLE), is a chronic autoimmune disease in which the immune system mistakenly attacks healthy tissues throughout the body. This can lead to inflammation and damage in various organs and tissues, including the skin, joints, kidneys, heart, lungs, and brain.
Data
Nevada’s Authority for Epidemiology
Access up-to-date data on all active infectious diseases reported in Nevada